I am 24 years old and since I was a little child I have been cursed with one of the worst cases of JRA (Juvenile Rheumatoid Arthritis) ever. Now, with brittle bones and constricted muscles I have very little choices in what meds I have to take just to stay out of the red zone. After growing up on hundreds of pharmaceuticals my digestive system is shot. I have had several procedures to help with the gi problems but the only thing that I have had any luck with at all is simply quitting the pharmaceuticals all together. After being on a feeding tube for a very long time I wanted nothing to do with meds. My mother never wanted me to take the pharmaceuticals but she had no choice. The doctors said that if she stopped giving me the meds that they would turn her into children services. When I turned 18 I had the power to turn down the meds myself. I then turned to Marijuana for my pain management. Aside from pain management, I have practically no appetite. Probably from the damage done on the inside. Pot makes me hungry. It takes my pain and inflammation down to practically nothing. Some people don’t believe me when I say that but it is a fact in my life. I live in Ohio and I have heard that I could some how get marijuana for my situation. Is this true? Can I get the one drug that helps me more than it hurts me? I hate the ropes I have to go through just to eat more and live a little. Any advice? Any knowledge?
i’ve had it for 3 years now and i know i’m young for arthritis but it runs in my family. any good ideas for me to deal with the pain???????????
Product Description
This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to juvenile rheumatoid arthritis (also Juvenile arthritis; Juvenile chronic arthritis; Juvenile chronic polyarthritis; Juvenile polyarthritis; Still disease; Still’s disease), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on juvenile rheumatoid arthritis. Given patients’ increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
Ive had it sense i was a young girl.But sense ive gotten older the pain has spread all over, even in my feet. Its hard to do little things like cleaning. And i cant go shopping for to long because the pain and swelling in my feet is just too much to take. What can relieve this pain without going on meds?
i want to do bowling in high school this year. i am pretty good at it so i’m pretty sure i will make the team. but practice is like everyday and it will be strain on my joints. i don’t have sever arthritis but i do always have pain in most of my joints. so would it be a good idea to do bowling this year? if it makes a difference i am 14.
I know it’s not very phisically demanding but just standing hurts my ankles a lot.
Does anyone have personal or professional experince with this condition? My daughter may have it, and I would love to know what kinds of things to expect, what might happen, any information really. She has an appointment with a Rheumatologist in June.
I have read information about this on the web, I am hoping for more personalazied information. Like how quickly it can progress, what to look for , or watch for, problems or complications to prepare myself for, ect. Just something more personal than a medical description of it.
The best information I have seen on this condition is at : http://www.rheumatology.org/public/factsheets/arth_in_children.asp?aud=pat#1
thank you dear Nina 
if so, how does it work?